The 5-year-old Wagga girl, who has relapsed three times since she was first diagnosed at 6-months of age, has been given a leg-up by the Warratahs Rugby Club. 

President Warwick Grant held a fundraiser in Maureka’s name, auctioning off team jerseys and memorabilia.

In just one night, the Waratahs raised over $4000 to help Maureka’s family afford her treatment. 

Her mother, Amy Wright, said the gesture was “beautiful, heart-warming” and would help support Maureka’s long road to recovery. 

“Every little bit counts and while I don’t ask people to donate, it will help us so much with travelling to hospital and helping Maureka,” she said. 

“Going through it for the first couple of years I didn’t think of it as a bad condition because I didn’t want to.

“It’s harder now because it’s all starting to take its toll.”

The disease has also caused her diabetes insipidus, which affects the pituitary gland in the brain and causes Maureka to be constantly thirsty and have weak bladder control.

It is believed the disease is extremely rare and affects just one in 200,000.