The performance artist, who trained to be an actor at Wagga CSU, lives in a sealed room at her mother's house in Canberra, which she leaves only occasionally with the help of a team of carers.

Ms Cormick, aged 35, has a severe case of mast cell activation syndrome, an immunological disorder which makes her susceptible to minute allergic triggers.

A cup of takeaway coffee being opened near her, for example, would be enough to trigger a violent and potentially deadly reaction of seizures and anaphylaxis.

"I'm not the only person in the world who has to live inside a sealed room because of this disorder," she said.

"There are way more than you would think, because you don't see us. We don't go outside."

Ms Cormick is largely housebound because of what she calls a "trifecta" of rarely-diagnosed genetic diseases.

One of these is postural orthostatic tachycardia syndrome, which causes a breakdown of the automatic functions in the body, "like knowing when to breathe".

She also has the most common of 14 types of Ehlers-Danlos syndrome, which affects all the connective tissue in her body and means her joints partially dislocate up to 30 times a day.

"All organs, blood vessels, veins, it affects everything ... everything that can, will go wrong," she said.

There's a big list of other conditions which come with Ehlers-Danlos, including "leaking spinal fluid, digestive issues".

"My brain is falling outside of my skull into my spine. Which is as painful as it sounds," Ms Cormick said.

Before her 2017 diagnosis, however, Ms Cormick had been living a "hyper able" life.

A skilled acrobat and actor, her career took her from the Riverina to a famous dramatic arts school in Paris and refugee camps on the Turkish-Syrian border where she worked with a circus.

It was during her time in Europe that she started developing more noticeable symptoms of illness.

"I've been allergic to things since I was a young child. I just developed more and more and more allergies as I got older," she said.

"I didn't realise that was actually the hallmark of a particular disease."

In early 2015, "things got really, really bad" while Ms Cormick was performing with a drama troupe at the Edinburgh Fringe Festival.

"I had become allergic to all food. I started getting all these other symptoms that I had never had before: I was starting to have seizures. I was developing chronic pain," she said.

Her partner eventually convinced her to return to Australia where she now manages her condition with a team of specialists.

Ms Cormick has spent the past few months completely alone in her room due to coronavirus, where she can see her partner only through a window which is sealed shut.

If the one tablet which is safe for her to use breaks, she "might go a month with no digital access at all".

"When you live in a single room, that's very confronting," she said.

"I'm used to being with my own thoughts now because I spend the majority of my time alone ... but the main thing is it's really, really lonely."

Ms Cormick has in the past couple of years begun creating art again, which she said "took a lot of unpicking of the idea that I could solve my disability or my illness by trying hard enough".

She has now taken on the role of co-curator for a completely accessible Australia-wide arts festival being held out of Wagga.

Platform Riverina will take place on June 27 and feature artists, writers and speakers with a lived experience of disability.

The online event will in part explore the "social model of disability".

"That's the concept which is in opposition to the outdated, medical model of disability which says it's something wrong with someone's body," Ms Cormick said.

"The social model says there are bodies with difference and it is the physical space ... or societal attitude which create barriers for that body or do not support that body."

This concept also provided some of the inspiration for Ms Cormick's show The Mermaid, which she performed in Sydney in January after months of gruelling preparation.

"In the ocean the mermaid can move freely and go anywhere, but on land requires all of the things like the wheelchair and the breathing device," she said.

"It's not the mermaid's body that causes the problem. It's the space."

Wagga artist Scott Howie, Platform Riverina's creative producer, said everyone had "a right to participate in the cultural life of the places where they live".

"I think this will have the ability to change people's perceptions of what disabled artists do and the type of work that they make," he said.

"We have to be careful of applauding ourselves for doing a little bit [to support disabled people] because there's a lot more that we all can do."

Platform is a free event which will be streamed on Saturday June 27, with sessions recorded and available to access in the weeks following.

platformriverina.com