Henley Carey's family share battle with rare genetic disease and the challenge ahead

By Jessica McLaughlin
Updated May 17 2020 - 6:43pm, first published May 15 2020 - 1:00pm
TIGHT KNIT: Darcy, 3, Sean, Henly, 1 and Alicia Henley are each other's biggest support. Picture: April Nagle
TIGHT KNIT: Darcy, 3, Sean, Henly, 1 and Alicia Henley are each other's biggest support. Picture: April Nagle

THE FAMILY of a little boy with a rare disorder are calling on the community to help support his long medical journey ahead.

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