Junee's Jackie Starr is building awareness for RHIZO after her great-niece was diagnosed two years ago

Emma Horn
Updated June 26 2019 - 4:01pm, first published June 20 2019 - 3:08pm
ONE IN A BILLION: Posie Ryan was born with one of the world's rarest congenital conditions. Despite her illness, her family say, she is always laughing. Pictured on the right with parents Trevor and Kiera, and four-year-old brother Parker. Picture: supplied
ONE IN A BILLION: Posie Ryan was born with one of the world's rarest congenital conditions. Despite her illness, her family say, she is always laughing. Pictured on the right with parents Trevor and Kiera, and four-year-old brother Parker. Picture: supplied

She can't spell it, she can barely say it and up until two years ago, she did not even know it existed.

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Emma Horn

Emma Horn

Supervising producer

Supervising producer of the national video team. Former features and weekender writer for The Daily Advertiser. Now based in the NSW Hunter region. Small, quiet, and a student of the Julie Bishop School Of Staring. Usually dressed in something colourful, always snacking on something homemade. Friend to most mothers and all dogs. Got stories? Get in touch. emma.horn@austcommunitymedia.com.au

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